Tammy Moore (@temerityTM) header
Tammy Moore (@temerityTM) profile picture

Digging in. ALS Canada CEO. Finding adventure and appreciation in the everyday - seize the day because life is too damn short. Be bold.

Toronto
Joined December 2009
Photo by Tammy Moore (@temerityTM)Photo by Tammy Moore (@temerityTM)Photo by Tammy Moore (@temerityTM)Photo by Tammy Moore (@temerityTM)Photo by Tammy Moore (@temerityTM)Photo by Tammy Moore (@temerityTM)Photo by Tammy Moore (@temerityTM)Photo by Tammy Moore (@temerityTM)Photo by Tammy Moore (@temerityTM)Photo by Tammy Moore (@temerityTM)
Tammy Moore retweeted
A victory that united a nation. 🇨🇦❤️ 🎥 NHL & NHLPA #4nations
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Tammy Moore retweeted
Red. White. And Golden! 🍁 Team Canada reigns supreme at the 4 Nations Face-Off, taking down the US in classic hockey fashion! 🇨🇦🏒 - Le Canada en or! 🍁 Équipe Canada s’impose à la Confrontation des 4 Nations battant les États-Unis dans la plus pure tradition du hockey! 🇨🇦🏒
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Tammy Moore retweeted
🇨🇦❤️🇨🇦❤️🇨🇦❤️🇨🇦❤️🇨🇦 Thé repeated, persistent attacks on our independence, sovereignty and self worth by President Trump require resilience and determination, qualities we have demonstrated over many years. Vive le CANADA 🇨🇦❤️🇨🇦❤️🇨🇦❤️🇨🇦❤️🇨🇦
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🚨TRUDEAU ADDRESSES THE AMERICAN PUBLIC🚨 We've always stood together, even during your darkest hours -- we've grieved together from the beaches of Normandy to the streets of Kandahar... to the Iranian hostage crisis...from 9/11 to Hurricane Katrina" This is the best speech he's ever given.
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Tammy Moore retweeted
Today, ALS Canada celebrates a monumental advocacy achievement: the Ontario Government's commitment of $13 million over three years in the 2024 Fall Economic Statement to support the Ontario Provincial ALS Program. To the ALS community, thank you. Together, we did this. This significant milestone was reached because of your collective action and tireless advocacy for change. To read more about the Ontario Provincial ALS Program and the Ontario government’s investment, visit bit.ly/4hBVp3c.
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Tammy Moore retweeted
Thank you, Janice Kennedy, for sharing about your sister Sheila's experience living with #ALS and the ongoing impact it has had on you. Together with the ALS community, we’ll continue to advocate to ensure the Ontario government implements our proposed solutions that will provide people living with ALS with a comprehensive continuum of care and a lifeline of hope and dignity. To read the full article, visit bit.ly/4gecuPU.
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🌟 Thank you so much to everyone who made the trip to Basel this year for the Alliance Meeting and those joining virtually. What a fantastic group of people coming together because of a shared passion for creating a world free of ALS/MND. 🤝
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Tammy Moore retweeted
🏒 Introducing the ALS Canada Buck-A-Puck for ALS! Starting today until Thursday, February 29, you can raise a buck and shoot a puck to support Canadians and their families living with #ALS. Register, fundraise, or donate to #BuckAPuckforALS by visiting bit.ly/404rpEN.
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Tammy Moore retweeted
It is with profound sadness that we recognize the passing of Chris Snow, who showed strength, courage, & resilience in the face of living with ALS. His advocacy for research & willingness to share his story touched countless lives. Our thoughts are with his family & loved ones.
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This would also be important for anyone who is supporting someone with ALS & curious about any changes in thinking, behaviour etc. Only ~15% of ppl with ALS will have an FTD diagnosis but ~50% can have some clinically detectable cognitive changes that can impact daily life.
💻 Webinar: On Wednesday, August 9 at 1 pm ET, join ALS Canada and learn more about how to support someone dealing with an ALS and frontotemporal dementia (FTD) diagnosis together. To register for this free webinar, visit bit.ly/3QkBaM5.
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Tammy Moore retweeted
#PullToEndALS is today! Even if you weren't able to make it out today, there's still time to donate - visit bit.ly/3C6RQ15 as we work towards our goal, continued investment in community-based support services in ON, advocacy, and research toward #aFutureWithoutALS.
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Tammy Moore retweeted
Right now, add your name to the growing list of people who want to see Canada continue to build toward being a primary destination for #ALS clinical trials: bit.ly/39ct45d #ALSAwarenessMonth #WhileIStillCan
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Tammy Moore retweeted
On June 21, Global ALS Awareness Day, we’ll host a webinar looking at the history of #ALS clinical trials in Canada and the current landscape. We’ll also discuss what ALS Canada is doing to support more clinical trials in Canada. Register now: bit.ly/3mnxyZz.
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Tammy Moore retweeted
Today @AmylyxPharma announced #HealthCanada has approved #AMX0035 w/ conditions. This decision is an advancement in available treatment options for #ALS but there is more work to be done for quick & equitable access under public drug programs. Read more: bit.ly/3OaVoU9
Tammy Moore retweeted
On May 31, 2022, Eledon Pharmaceuticals announced topline results from their Phase 2a trial of tegoprubart (formerly AT1501), a drug invented and developed at the ALS Therapy Development Institute (ALS TDI). Read more here: als.net/news/tegoprubart-at-…
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Tammy Moore retweeted
Join ALS Canada's Dr. David Taylor, along with three other recipients of @ALSMNDAlliance awards, for a fireside chat on Jan. 26 where they will be in conversation about their contributions to the #ALS field. Register below:
Join Jan 26 for a Fireside Chat with the 2021 Alliance Award Winners: @VPResearch_ALS (Humanitarian Award), Dr. Adriano Chio (Forbes Norris Award), @MelindaSKav and Sarah Solomon (Allied Health Professional Award) Register: als-mnd.org/events-programs/… #ALSMNDWithoutBorders
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Huge congratulations to Dr. David Taylor for his International Alliance of ALS/MND Association Humanitarian award. Well deserved! #alsmndsymp @ALSCanada
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Tammy Moore retweeted
Research by @NeuroCRU's Kristiana Salmon published in Journal of ALS-FTD shows inequities in #genetic testing for #ALS in Canada. Testing is essential to identify pALS who could benefit from therapies as well as the true prevalence of genetic mutations: bit.ly/alsgentest
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Tammy Moore retweeted
4/4 The many people and families around the world affected by SOD1-ALS who participated in the study deserve incredible thanks for their contributions. More information to come. bit.ly/3p8TytR
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Tammy Moore retweeted
3/4 - Other data from the study showed positive indications that the therapy may affect disease progression but further discussion and analysis across the field will help to better understand the complexity of the results and what this means for next steps.
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