Explaining the Good, Bad and Other MS News by the MS-Blog team @blizard_inst @QMULbartsthelon @NHSbartshealth
United Kingdom
Joined April 2013
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the_MSBlog retweeted
The MS-Blog – THE MS-BLOG FOR PEOPLE AFFECTED BY MULTIPLE SCLEROSIS. INTERPRETING GOOD, BAD AND OTHER NEWS multiple-sclerosis-research.… via @the_MSBlog
the_MSBlog retweeted
How can you support? The epic journey across Canada - rc4ms
youtube.com/shorts/sSYUJidU5…
the_MSBlog retweeted
Coming to the end of an intense 4 days @ECTRIMS with this fantastic group @preventiveneur1. Great to share some of the work we’re doing and build collaborations in person (as well as catching up with friends!)
the_MSBlog retweeted
Great work from Josh Breedon - very clear poster showing that using 🧬 risk scores from European studies is not particularly accurate for predicting MS in British South Asian people #ECTRIMS2022 @EastLondonGenes @adams_study @QMUL_WIPH @preventiveneur1
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Yesterday we presented the initial results from the Under and Over study #ECTRIMS2022 #thinkhand thank you to everyone who participated!
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Interesting 🔥 burning debate @ECTRIMS2022- should we treat RIS? 50% of patients with RIS will go on to develop MS 10 years after first MRI scan. Watch this space for results of ARISE trial tomorrow
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What risk factors increase risk of #RIS converting to #MS? Age <37, enhancing lesions, spinal cord lesion, infratentorial lesions & oligoclonal bands. 3 factors: 91% chance of developing MS in 2 years. #ECTRIMS2022
the_MSBlog retweeted
Do you believe presymptomatic #MS or radiological isolated syndrome #RIS should be actively monitored? #ECTRIMS2022 audience pre-debate response only 37% said YES. Hope Christine Lebrun-Frenay convinces the audience to start treatment if patient high risk for symptomatic #MS.
the_MSBlog retweeted
Can a creative stitching activity improve hand and arm function for people with #MS? These are a few of the patterns participants will attempt in the Under and Over study. We have a few places left if you want to be involved and are eligible...multiple-sclerosis-research.… #thinkhand
the_MSBlog retweeted
UL is oft neglected in MS Research! Help us change that narrative!Few places left to sign up to BartsMS underandover study. Fully remote! underandover.study #thinkhand @bartsMSblog @GavinGiovannoni @somehow_related @KlausSchmierer @shiftms @RachelHorne19 @Kimberley_AP
the_MSBlog retweeted
Our colleagues are carrying out this study. They are hoping to recruit people where one of the parents has MS and lives in Wales. Please pass on if you know anyone! Thanks
Are you or your partner having a baby-or know someone who is? Help us to find out how to best support families to give children the best start in life. Take part in our quick online questionnaire ncphwr.org.uk/portfolio/born… #BornInWales @ResearchWales
the_MSBlog retweeted
Big day for me today. Its the #Walk4onehour at @ChilternsMS starting at noon. Still an incy wincy bit short of my target so any donations to reach to £5,000 would be really appreciated. Love you all lots
justgiving.com/fundraising/w…
the_MSBlog retweeted
@monicacmarta @BartsMSBlog talking to young people with #MS from @EvelinaLondon @GreatOrmondSt at their Paediatric #MS Online events. The young people voted on topics they wanted to hear about
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Read about how our new project teaches families on #MS and Covid 19 in @editorNRTimes 📰
nrtimes.co.uk/educating-fami…
the_MSBlog retweeted
Very inspiring talk by Ulrik Dalgas at #ectrims2019
Early treatment (DMT) + Early treatment (physical exercise) can give a better long-term prognosis in pwMS.
#timematters
@BartsMSBlog
#rehabilitation #ms – at Stockholm, Sweden
the_MSBlog retweeted
Amazing support by JK Rowling. Unrivalled imagination & inspiration, underpinned by cash. Best of luck from all @BartsMSBlog @QMULBartsTheLon to the annrowlingclinic.org and colleagues at @EdinburghUni for new discoveries and leading patient care bbc.com/news/uk-scotland-496…
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Might make a more two-sided debate with a mixed audience, e.g. patients, nurses, general neurologists, other stakeholders? Somewhat preaching to the choir at ECTRIMS 🙂
the_MSBlog retweeted
#burningdebate #ECTRIMS2019 ?would you offer a follow-up if the PwMS avoids starting DMT?
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Drug costs consistently going up as meds get approved in the US! #burningdebate #ectrims2019
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MS drugs are not cost effective in the way they are used in the real world - compelling argument by Gisela Kobelt. We need to use our drugs better from a health economic perspective - and that may well be using more expensive drugs earlier #burningdebate