My son has profound autism. Spreading awareness.
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Joined October 2014
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“I wouldn’t change a thing about my child’s autism.”
Your autistic child can name all the dinosaurs.
My profoundly autistic child cannot speak, will need 24/7 care for life and has a life expectancy of 39 years.
We are not the same.
#autism #profoundautism
What I’ve noticed with level 1 autistic people is that they think their autism is the only one that counts. If you talk about the realities of severe autism, they say “that’s not autism.”
Yeah and it’s a shame. The criteria should have never expanded.
Children newly diagnosed with autism look less like the cases of a decade ago
msn.com/en-us/health/disease…
Temple says it was a mistake to remove Asperger’s from the dsm-5. And she’s RIGHT. ❤️
Yes!!! Autism is now trendy.
The 'neurodiversity' movement is partly to blame for the explosion of 'special-educational needs'. It has turned disorders and conditions into appealing identities. This is a disaster for kids and for the schools struggling to cope, writes Dave Clements
buff.ly/DMzMmpR
It’s not really inclusive if profound autism gets left behind.
There’s something wrong with inclusivity if, by including more people, we lose sight of the needs of the most vulnerable.
I’ve recently read books called things like the ‘ultimate handbook’ or ‘everything a parent needs to know’ about neurodivergence and autism which make no mention at all of those who are severely autistic. They are simply not included.
Nothing about self-injurious behaviour, or eloping, or minimal speech. Nothing about how to reach a child who seems uninterested in you or other people. Nothing about extreme repetitive behaviour or pica. Nothing about cognitive delay or aggression.
Instead they write about anxiety, and school distress, and trauma.
I’m not saying that these things aren’t important. Of course they are (and I often write about them myself) but it should not be possible to publish a book which claims to cover everything, while leaving out the very people who cannot speak up to say ‘we are missing’.
This is not inclusivity.
It’s strange that Sylvester Stallone hasn’t spoken one word about his severely autistic 2nd son Seargeoh since 1990.
I have a profoundly autistic son and I agree with this statement. Lumping everyone under the autism umbrella was a huge mistake and has made people like my son invisible because they are overshadowed by people who can advocate for themselves.
TT✝️💜 retweeted
parenting a child who has no spoken language is difficult enough without "neurodiversity affirming" people online saying they "get the ick" when they see parents talk about being sad that their kids can't speak to them. it's framed as us "not accepting our kids." GTFO.
RFK is insinuating that family members should be caregivers for no pay because that’s how it used to be. Not feasible today when you need two incomes to survive. What about single parents? And lack of DSPs who will work with severe autism?
TT✝️💜 retweeted
The obsession of some autism self-advocates have with pretending they have it just as bad as people with profound autism is genuinely bizarre.
People with profound autism obviously have greater needs than we do, why are we even pretending that isn't true.
