Honoring the @HopkinsMedicine #sicklecelldisease patient community -
Individuals & caregivers whose altruism and courage moves #sicklecelldisease research forward
@HopkinsHeme @ASH_hematology @LydiaPecker @DocsDock200 @ChoupaSacha @lifewithdrbria @macy_early @RicJhu
Round out #SickleCellDiseaseAwarenessMonth by joining @HopkinsMedicine on Friday, September 29th, for the 2nd Annual Celebration of Patient Contributions to Sickle Cell Disease Research at Johns Hopkins!
RSVP using this link: forms.gle/8h4bT5AjHM4qdpRA7
Do you even ECHO?
@SiNERGeSCD Project Echo informs care for 9,000 individuals with #sicklecelldisease
[👀That's about 10% of the U.S. #sicklecelldisease pt population]
#sicklecellawareness
#highqualitycare
You can Sickle Cell Echo With U.S.
#MedTwitter
#SickleCellAwarenessMonth
#sicklecelldisease
@jkw4444 @jstrous1 @CharityOyedeji
📢 Starting now for GRNDAD SPEAKS
@DrMonicaHulbert delivers
🧠Treat the brain & the pain: Expanding access to curative therapy for children with sickle cell disease.
Connecting:
jhjhm.zoom.us/meeting/regist…
#sicklecelldisease
@LydiaPecker @jkw4444
Join the American College of Emergency Physician for a discussion about how to manage sickle cell patients in the emergency room at their Alleviating the Pain Webinar on Thursday, December 16th at 2 PM CST. To register, please visit: webapps.acep.org/meetingsv1/…
SiNERGe retweeted
Register now for our upcoming webinar on COVID-19 #vaccines and reproductive health on Sept 25! Our experts are ready to answer all your questions related to #fertility, reproductive health, and #COVID19. Sign up: bit.ly/covid-and-fertility-w… @BlackHealthCAN
Wow! We will be following along @stevenhardyphd
Happy #SickleCellAwarenessMonth 2021! This year, I will attempt to elevate the voices of #SickleCell Warriors themselves by doing my best #qualitative research consumer impression. 1/4
SiNERGe retweeted
It’s #WorldSickleCellDay and I’m proud to be joining the board of SC RED —founded by @sickle_t to address the reproductive health concerns of sickle cell warriors. Check out the new website!
Proud to launch this website on WORLD SICKLE CELL DAY! This is the first and only org to take on sickle cell and reproductive health. Www.sicklecellred.org. Please support @drzsicklecell @PTMcGann @ASHCollab @ASH_hematology @sicklecelldoc @sicklecelldoc
We join with our #sicklecell community to shine light on World Sickle Cell Disease Day!
❓What's your favorite resource for patients and families about sickle cell disease
❓What's your favorite resource for #hematologists?
SiNERGe retweeted
#ShinetheLightonSickleCell Picnic Familiar Celebrando el Dia Mundial del Sickle Cell Disease "Shine the Light"
June 19 #WSCD2021 Prestigio to Anemia Falciforme PR!
SiNERGe retweeted
Checkout my opt-Ed! Curtailing Medicaid coverage of accelerated approval therapies threatens patients' access thehill.com/opinion/healthca…
SiNERGe retweeted
A True @HopkinsHeme Gem: The Johns Hopkins Sickle Cell Center for Adults provides exceptional care to 600+ patients with its multidisciplinary outpatient clinic, day infusion center, inpatient consult service, and even a COVID bio-mode room. #WorldSickleCellDay @HopkinsMedicine
SiNERGe retweeted
Thank you @DexterDarden for sharing your ❤️with us. You're a #Sicklecellwarrior. #Shinethelightonsicklecell #WSCD #WSCD2021 @SiNERGeSCD @SCDAAorg @SCD_Philly #NextGenSickleCellLeaders
youtube.com/watch?v=vdRvigw5…
SiNERGe retweeted
What will #ShinetheLightonSickleCell in your area on June 19 to celebrate #WSCD2021? @SCDAAorg @SiNERGeSCD @SCTPN @mscdaorg
SiNERGe retweeted
OK...wow....Philly and NJ are ON IT for #ShinetheLightonSickleCell #WSCD #WSCD2021 @SiNERGeSCD @SCDAAorg @SCD_Philly @SickleCellANJ check out video by Murine #NextGenSickleCellLeaders
youtube.com/watch?v=iWk9FVX6…




















