Empowering families through technology: TANDem is an international multi-disciplinary project involving multiple stakeholders from the TSC community.
Joined January 2021
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TANDconsortium retweeted
Make sure to find us at the 2022 @TSCAlliance World Tuberous Sclerosis Complex (TSC) Conference, an important event bringing together members of the TSC community to share the latest on research and treatment.
TANDconsortium retweeted
Powerful testimony of life with TSC & Inspiring session on TAND and the power of global collaboration #WorldTSCConference @TANDconsortium @tscalliance #beTSC
TANDconsortium retweeted
Tonight during the opening of the 2022 World TSC Conference, the @RK_BhatiaFDN announced a new collaboration with the @tscalliance to better address TAND. The $2.5 million gift is the largest single donation in the TSC Alliance's history.
Learn more: ow.ly/MTB850K6TlA
TANDconsortium retweeted
Congratulations to @KariRosbeck for receiving the Gomez award from
@tscalliance! No one deserves more praise than the patient advocate and leader who has moved the needle for people with #TSC more than anyone before!! 👏👏👏
TANDconsortium retweeted
We hope YOU will be able to join us at the 2022 World TSC Conference in Dallas, TX July 28-31! Early bird registration ends June 30.
Register now: ow.ly/iR7h50JG3X7
Learn more: ow.ly/mz8L50JG45Y
#worldTSCconference
TANDconsortium retweeted
RT @tsalliance: Here’s a #worldTSCconference update from Dr. Martina Bebin of @uabmedicine on the PREVent Trial for infants with TSC at risk of #Epilepsy
TANDconsortium retweeted
Amazing participation at the TSC Clinic Directors Meeting helping kick off the #WorldTSCConference @tscalliance – at Dallas, TX
TANDconsortium retweeted
So happy to be at the #worldtscconference with so many friends and colleagues. Thanks to @tscalliance for making this possible! Families and affected individuals are connecting with each other and with scientists and clinical leaders.
TANDconsortium retweeted
Join us for the TAND mini-symposium 21 April 2022, 2-5pm CET
Abstract submission DL 4 April 5pm
Registration details 👇
#tuberoussclerosiscomplex #TSC #TAND @TANDconsortium
TANDconsortium retweeted
Very pleased to announce that our first #tuberoussclerosiscomplex TAND Consortium research paper has been published #OpenAccess in the Journal of Neurodevelopmental Disorders ➡️📑 READ HERE! jneurodevdisorders.biomedcen…
TANDconsortium retweeted
LAST CALL: Today is the last day to apply for a scholarship for the 2022 World TSC Conference.
Apply now: ow.ly/2KTY50I6XZB
Learn more about the 2022 World TSC Conference: ow.ly/XOp350I6XZp
TANDconsortium retweeted
📄 The second paper of the #TANDem project has now been published in @FrontPsychiatry. This paper outlines the protocol and aims of the project, and is freely available here ➡️ frontiersin.org/articles/10.… @UKTSA @tscalliance
TANDconsortium retweeted
Meet @tscalliance speaker - Prof Anna Jansen
Prof Jansen is a paediatric neurologist @ Antwerp University Hospital. She co-leads the TANDem project, an international MDT mobile-health project to empower families & individuals who live with TSC around the world.
TANDconsortium retweeted
Session 3 (11.30-12.15) explores sleep in the context of TAND, with invited guest speakers from the @TANDconsortium TANDem project - Prof Petrus J de Vries and Dr Stephanie Vanclooster! Please RT - all welcome to attend! @UKTSA @tscalliance
TANDconsortium retweeted
Multivariate data analysis identifies natural clusters of Tuberous Sclerosis Complex Associated Neuropsychiatric Disorders (TAND) @TANDconsortium ojrd.biomedcentral.com/artic…
TANDconsortium retweeted
Autistics may:
❤️ Speak
🧡 Not speak
💛 Have limited speech
💚 Type
💙 Use devices
💜 Use picture systems
💖 and so much more!
Embracing all types of communication is key to creating an inclusive world.
TANDconsortium retweeted
Today is TSC Global Awareness Day, when the TSC community stands united. We want you to share this post and answer "What I wish other people knew about TSC?" - help people better know what TSC is, how it affects people, and what hopes we have for the future. #TSCglobalday
TANDconsortium retweeted
One week to go until 'A values-based approach to improving mental health (ACT) in TSC'. The FREE virtual event will focus on how people living with TSC can be supported to live well alongside ongoing health problems
Register your place here: tuberous-sclerosis.org/event…
TANDconsortium retweeted
Great news! The Cardiff TSC Clinic will receive long-term funding from the Welsh Health Specialised Services Committee! This comes after years of hard work from the TSC clinic, the TSC community and the TSA - with the clinic's future previously in doubt.
tuberous-sclerosis.org/long-…
TANDconsortium retweeted
Tomorrow is TSC Global Awareness Day! You can be a part of it through Tea & SCones for TSC: Pop on the kettle, connect with loved ones and improve lives of those living with TSC. No time to plan? Do an event later in May to kick-start seeing loved ones!
tuberous-sclerosis.org/get-i…
