Lifelong Autoimmunity #Kidney #TRANSPLANT #CleanAir #MasksInHealthcare #NarcissisticAbuseAwareness Musician/Survivor/Rommie rescue dog servant 🎼💪🐕🦺
England
Joined April 2015
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A huge victory for the UK’s #clinicallyvulnerable, but also for everyone who works in and uses healthcare. The recommendations, when implemented, will have far reaching impacts on many lives, now and in the future. Tremendous achievement for @cv_cev 💙💜💗
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Today's #CovidInquiry report into healthcare is a victory for everyone at higher risk.
Baroness Hallett accepted our key points:
Covid is airborne
The NHS must improve ventilation
And vulnerable people must be empowered and have the right to wear better masks -not abandoned
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Amanda Tomlins retweeted
Went to Parliament today, to attend a patient advocacy event by CBFFJ. Lobbied my MP & got a meeting as had update to ongoing dialogue. And made attending safely an advocacy thing in itself. For all the talk of HEPA & good ventilation there, my CO2 monitor was often in the red.
ALT autumn view of London parliament
ALT three masked people outside parliament with insta captions on negotiating reasonable adjustments with security and that accidental Protect The Heart of the Arts reunion
ALT crowd of people with two masked people in foreground. Bereaved Families for Justice banners in back
ALT co2 ventilation monitor reading 1529 ppm
Amanda Tomlins retweeted
I need to find my replacement. 💔
My health is failing, and doctors say I may have to step down from running my rescue and animal shelter sooner than I ever imagined.
I’m looking for the human who will love these animals as fiercely as I do—someone ready to step up, lead, and protect these precious souls when I can no longer carry the weight.
Please RETWEET to help me find them. My animals are counting on us. 🐾👇
#dogs #rescue #animals #sos – at Greater Noida, India
Amanda Tomlins retweeted
One of the most effective ways to keep people from questioning an unjust system is to convince them that their ability to survive it makes them morally superior to those who can't.
Stop judging survivors. Start listening, believing and supporting them.
#DomesticAbuse
#coercivecontrol
#narcissisticabuseawareness
Amanda Tomlins retweeted
The UK does not have a welfare crisis. It does, instead, have politicians who want to scapegoat the most vulnerable people in our society. Unscrupulous neoliberal politicians and commentators are our problem. Those in need are not. youtu.be/C89jDlwF1vs?si=LMYt…
Amanda Tomlins retweeted
What is it like to be married to a narcissist/psychopath?
1. Scary. You know they will punish you if they are not happy with you. They sometimes suddenly launch into a powerful rage. They sometimes don’t talk to you for long periods.
2. Hurtful. They put their wants and needs first. They sabotage things that make you happy.
3. Confusing. They sometimes say and do nice things.
4. Abusive. They might physically hurt you or remove access to money or rape you or scream at you or stand over and yell at you for hours about reasonable requests or compromise your children.
5. Frustrating. They often block, delay or postpone decisions that are important to you.
6. Confidence-reducing. They demean, belittle and minimise you and your needs and points you make.
7. Lonely. They often control who you can see or make your relationships with others difficult. There is no such thing as real partnership. You possibly realise that they have been undermining you behind your back but positioning the undermining in a way that seems supportive. For example, ‘She is having mental health issues so best to stay away for awhile. Also best not to raise it with her but I’m giving her a lot of support.’
8. Anxiety-inducing. You often know they are lying but they never acknowledge it so you are in a constant state of wondering and second guessing. Fact is, they are always leading a double life. They leave things until the last minute, rearrange plans, get you to do a lot of work then ignore the results, take actions that ensure you are always on egg shells.
9. Soul destroying. You do things to keep the peace, none of which support you.
10. Isolating. You don’t really know how to tell people what you are experiencing. Often, it is death by 1000 cuts and to relay just one or two of these cuts does not allow others to understand yet to explain the entire context is too time-consuming and intense. Have I missed any?
Amanda Tomlins retweeted
To be disabled is almost always to be traumatized. It’s living in a body that can’t keep you safe. It’s doctors dismissing you. It’s family and friends abandoning you. It’s living in a society that doesn’t see your value. It’s constantly having to prove your life is worth living.
Amanda Tomlins retweeted
With a narcissist/psychopath, the target learns it is too exhausting & hurtful to assert their own needs.
There is no line a narcissist/psychopath will not cross.
The moment the target sets a boundary, a tough punishment is administered.
This is how coercive control works.
Amanda Tomlins retweeted
if you know anyone with a disability or chronic illness, you will know that there is no help out there. not from the government, not from the NHS, not from society; quite the opposite in fact. you are entirely on your own if you become disabled. i'm gonna keep wearing a mask x
Amanda Tomlins retweeted
Well, yesterday was a bit of a shitshow.
I fell out of my wheelchair, hurt my foot and landed rather spectacularly on my arse. Not ideal, but hardly worthy of a medical emergency…. except less than ten minutes later, I was unconscious and being blue-lighted into hospital. I know. Whopper.
It wasn’t because of my foot, mind you… Nooo. It was my adrenal glands.
I have something called #AddisonsDisease which means those two little glands above your kidneys don’t produce cortisol. And if you didn’t know, cortisol is rather bloody important. As in, you literally cannot stay alive without it. So… I take steroids every day to do the job my adrenal glands have apparently resigned from.
The trouble is, when healthy people get injured, ill or stressed, their bodies automatically produce extra cortisol. Mine? Nope… nothing. “You’re on your own, love.” Aaaand suddenly a little tumble becomes a life-threatening adrenal crisis.
Blood pressure plummets, consciousness disappears, and without an emergency hydrocortisone injection, things can go very badly wrong rather quickly.
But here’the really upsetting part.
The life-saving injection we need to use, isn’t ready to use!
Nay nay nay… no speedy pen, or pre-filled syringes here. You have to open a little glass ampoule of sterile water, draw the liquid into a syringe, inject it into a separate vial containing powdered hydrocortisone, gently mix and WAIT until the powder dissolves, then draw the medication back into the syringe. After that, you need to fit the appropriate IM needle, prepare the injection site and inject it deep into a muscle, usually your thigh.
All whilst vomiting, shaking, and usually losing consciousness.
I mean, who on earth thought that was a sensible idea?!
I’ve got to a point now, where I’ve resorted to preparing syringes in advance, despite knowing the risks, and the reduce efficacy… because something is better than nothing. And let’s face it… when you’re partially unconscious, your chemistry skills are somewhat limited.
All joking aside though, the sobering reality of this is that research suggests around 1 in 200 people with adrenal insufficiency die from adrenal crisis each and every year. A statistic that should enrage us.
I’m not telling you this for sympathy. I’m telling you because we desperately need as much awareness to campaign for safer emergency medication that’s actually easy to administer in an emergency.
I was lucky yesterday. I got the treatment I needed, and I’m still here to have a good moan about it. But not everyone gets to tell their story afterwards.
I wonder how many people have died with everything they needed to survive sitting right beside them.
#AddisonsDisease @AddisonsUK
Amanda Tomlins retweeted
Normally @UKHSA when the graph exceeds the top of the axis, you increase the axis.
Amanda Tomlins retweeted
📢 Ever been told to take your mask off at a hospital appointment?
If you’re immunosuppressed, or offered a flu vaccine because of your age, a pregnancy or a health condition, or in a Clinically Vulnerable household take our quick survey.
Closes 7 Nov
forms.gle/TzeMmLhRUdvtgtGCA
Amanda Tomlins retweeted
How do I avoid being targeted by a narcissist, psychopath, predator/dark personality?
Tough question because predators DO target very specific types. If you are kind, well-meaning, honest and have some kind of vulnerability you are much more likely to get targeted.
A few protective recommendations include:
1. If you have low sense of self worth, invest in support with increasing it. Predators smell it.
2. Do not over-share about yourself. This is recognised by predators as a sign of ‘niceness’ which means greater susceptibility to manipulation and control.
3. Practise saying ‘no’. Predators test in the early days to see if boundaries can be pushed. If you are practised at declining as well as accepting proposals, suggestions, ideas, offers, requests for help, you are not such an obvious target.
4. Know the red flags, know the attributes, know the tactics. There are many, many subtle signs that are predator give-aways.
I include them in my posts. They are also in my PhD. The book will be out soon. Make sure you are totally conversant with them. When you see a few, start researching.
5. Do research! So important. If you have concerns about someone, ask around about them, search the internet, research their businesses, see who they are connected with. Eventually the data paints a picture.
6. Posture, walking gait, should be confident. One study showed that predators could identify an easy target from gait!
7. Do not openly discuss that you are estranged from, geographically distant from or have no family. Predators target those who are isolated or can be isolated.
Amanda Tomlins retweeted
💔 IN MEMORY OF JESSE ADAMS — A TRUE HERO FOR ANIMALS 💔
It is with enormous sadness that we have learned of the tragic death of Jesse Adams, founder of RainCoast Dog Rescue Society in Canada, who lost his life while carrying out an animal rescue mission in one of the most dangerous areas of Ukraine.
Jesse dedicated his life to saving animals, even when it meant putting his own life at risk.
We first came to know Jesse in 2021, when Afghanistan fell to the Taliban. Jesse and RainCoast were among the extraordinary organisations that came together to assist KSAR with the evacuation of 285 cats and dogs, helping many find loving forever homes.
Following Russia's invasion of Ukraine in 2022, Jesse travelled to the border to help fleeing families and their pets, providing veterinary care, supplies and assistance getting animals to safety.
He returned repeatedly, undertaking increasingly dangerous missions.
Most recently, Jesse worked alongside Animal Rescue Kharkiv, rescuing hundreds of animals from devastated frontline communities under constant threat from drones, missiles and artillery.
These were extraordinary acts of compassion and courage in the face of unimaginable danger.
Jesse knew the risks. He knew every mission could be his last. Yet he continued because he believed animals caught in conflict deserved protection just as much as those living in peace.
Those of us working in animal rescue in conflict zones understand and accept these risks. But few possess the courage to repeatedly travel towards danger when everyone else is trying to escape it.
Jesse was one of those very special people.
His death is a devastating loss to his family, friends, RainCoast and the international animal rescue community.
Our hearts go out to everyone who knew and loved him, particularly the Ukrainian rescuers who worked alongside him.
His legacy lives on in every animal he saved and every rescuer he inspired.
Rest in peace, Jesse. The world has lost an extraordinary human being, and the animals have lost a true champion. 🐾💔
With love and deepest respect,
Louise and everyone at War Paws
#JesseAdams #RainCoastDogRescue #WarPaws #Ukraine #AnimalRescue
Amanda Tomlins retweeted
What if the most courageous thing a cancer patient can do is to stop trying to prove how courageous they are?
Amanda Tomlins retweeted
Wow an amazing form of bioelectronic medicine!
An implantable, wirelessly powered electronic device could offer a drug-free approach to managing the intertwined metabolic disorders of obesity and type 2 diabetes.
The device uses electrocatalysis to remove excess glucose from the bloodstream on demand.
Learn more in Science: scim.ag/47twScK
Amanda Tomlins retweeted
Do all people have good in them?
Is it important to support the diversity of each person?
If your answer to these questions is yes, you are at risk of exploitation & harm.
I have studied predators for decades. Millions of people are ‘bad’ & only do good things to disguise this.
Amanda Tomlins retweeted
This week, I received my first dose of Anktiva (N-803) for Long COVID as part of a clinical trial!
Feel free to ask me anything. I’ll be sharing updates on my progress and experience as time goes on!
@DrPatrick @Av8rLady @longcovidlabs @ImmunityBio @COVID19_disease
Amanda Tomlins retweeted
I’m excited! 😊The team at Kalmor have produced the Persistent Predatory Personality model at a glance.
The link is in this post.
This model is based on the deepest study of our global knowledge of those who harm by choice ever undertaken.
It is also based on data from the only research ever conducted with experts working with those who harm by choice outside of prison in areas such as law, medicine, religion, cults, coercive control in domestic violence, human trafficking, child sex trafficking, business, politics and their targets/victims.
It also includes data from those who harm by choice within the prison system as well as some of the top academics in the world.
It contains the 20 shared attributes that all dark personalities/predators share.
It also contains the 25 tactics they use aggressively to harm and avoid accountability.
You don’t have to read through the PhD document any more.
It’s here…
kalmor.com.au/the-persistent…