Taking a rest from advocacy Activist health, well-being, welfare & work #LongCovid #FBLC @WorkingWithLC Retired occupational therapist, PhD #SuicidePrevention
Joined November 2015
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Will you wear a mask please ?
Hairdresser: “yes”
Vet: “yes”
Carpenter : “yes”
Never a NO from anyone I ask until this:
#NHS #nurses : “No it’s our right not too”
#COVIDisAirborne
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
The #COVIDInquiry has shown the serious failures in #SocialCare during the pandemic. Disabled people paid an unacceptable price when social care was treated as an afterthought. #DisabledPeople must be involved to shape these reforms. Read our response: tinyurl.com/bdh4m9nj
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
“For people living with chronic health conditions or disability, the air in a room can decide whether they’re able to safely attend work, school or an appointment, and right now they’re left guessing.”
#MakingTheInvisibleVisible
The air we share indoors shouldn't be invisible.
GO AQS is back for #MIV26 with @SaferAirProject! 💙 We’re sharing our live indoor air quality. Transparency makes the world better
Read the full article: goaqs.org/2026/10/26/go-aqs-…
#IndoorAirQuality #MakeTheInvisibleVisible
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
#journalists ahead of the #budget a plea to remember
🚨Personal Independence Payment (PIP) is NOT an out of work benefit 🚨
Please challenge guests who assume it is.
You can work AND claim PIP.
#Budget2026
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
We know #LongCovidCosts and the evidence is piling high... yet we still have unsafe workplaces and a disregard for the need for #CleanAir and #Masks and the significant risks of reinfection for workers with #LongCovid
@LC_Physio
@SupportingHH_UK
jheor.org/article/170196-eco…
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
🚨 EXC: Nottingham hospital launches urgent investigation into hip fracture deaths as its mortality rate hits 50% more than national average - the problem is linked to long delays for emergency surgery according to internal documents.
Full story: thetimes.com/article/b5bc397…
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
I will say this- again.
In a safety critical 'industry' like healthcare?
Lesser trained staff usage-at scale-will cause harm.
You will 'get away with it' a lot of times.
Yet all it needs is 'one miss'.
And the higher training reduces the chance of that 'one' - it's what training is all about.
If you don't understand that?
You fail safety issues
And you fail as an educator and trainer.
Thank you @JanetEastham for continuing to raise the issue.
The irony?
Every single person responsible for such decisions regards 'what the public can have' - reaches out to a doctor when they need help for their loved one.
'Cake for me. None for you.'
Dylan Cope died after an A&E nurse practitioner mistook his abdominal pain for flu, having ignored his GP’s referral for suspected appendicitis. His family thought she was a doctor.
A coroner found he would have survived had a senior doctor examined him.
telegraph.co.uk/news/2026/10…
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
The most incredible & most accessible gig I have ever attended.
😷 or pluslife
Lft negative
Signed & captioned
🦽 accessible
Livestreamed
@SmartairUk purifiers
My friends Kindred Prisms & Stottie two of 5 disabled artists showcased
@Drake_Music showing what can be achieved 🧵
ALT A photograph of the host Miss Jacqui and 5 disabled artists showcased. All apart from Miss Jacqui wearing a mask on stage.
ALT A selfie of me and 4 friends sat around a table all masked. I have covered some faces with masked emojis.
ALT a photo of the many posters around from LSO St Lukes Help us protect everyone please wear a mask, with a graphic of a mask wearing person. Thank you LSO
ALT a picture of the projection above the stage with Interval, please keep masks on.
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
Here are the studies🧵Covid can cause;
Cognitive impairment, brain shrinkage, heart attacks, strokes, kidney damage, lung damage, diabetes, clots & other blood disorders, immunological & neurological disorders.
It is multisystem, acute & potentially chronic (1 in 10 infections)🧵
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
Mask up & stay safe everyone! 😷🦠🫀
YOUR ATTENTION:
🚨Every new COVID-19 (re)infection elevates your cardiovascular risk profile. Even mild cases can raise the odds of a heart attack, stroke, heart failure, and other CV events for months to years afterward. Risk is higher with more severe illness, yes, but it’s certainly not limited to severe disease. Updated vaccination will show some mitigation(infection severity↓) but doesn’t give you a risk-free pass!
#AvoidSars2 #AvoidReinfections #UpdateVaccination
➡️Supportive links:
1. Xie et al., Nature Medicine (2022): Long-term cardiovascular outcomes of COVID-19 (elevated risk even in non-hospitalized patients, graded by severity).
nature.com/articles/s41591-0…
2. American Heart Association news release (2024) on the UK Biobank analysis (≈2× risk of heart attack/stroke/death for up to 3 years after any COVID-19 infection).
newsroom.heart.org/news/covi…
3. Lindgren et al., Journal of Internal Medicine (2026): Nationwide Swedish matched cohort (nearly doubled long-term MACE and death risk in hospitalized cases, persisting beyond year 1).
onlinelibrary.wiley.com/doi/…
4. Hadidchi et al., Journal of Human Hypertension (2026): Elevated CV outcomes (including in non-hospitalized patients) among those with pre-existing hypertension.
nature.com/articles/s41371-0…
5. CARTESIAN study, European Heart Journal (2025): Accelerated vascular aging / arterial stiffness after COVID-19, including mild cases:
academic.oup.com/eurheartj/a…
➡️These five links give a clear progression from the early 2022 data through 2024–2026 confirmation!!
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
TW suicide & #LongCovid research 👇
When previously advocating with #LongCovid groups this is something we warned about in our written U.K. government submissions @WorkingWithLC
We must have #SuicidePrevention
@LC_Physio
@SupportingHH_UK
Sometimes it is with a heavy heart that the increasing relevance of particular research projects is brought home. So too with our funded project on "living death, social death and #suicide amongst #LongCovid patients in the Netherlands and Germany".
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
Fantastic information from @UKPoTS on #PoTSAwarenessDay
Many of our #LongCovid members suffer with this debilitating condition
Educational resources for both patients and HCWs on their website
potsuk.org/
1/5 Happy 7th 🌟#PoTSAwarenessDay🌟
Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating health condition.
#PoTS is an abnormality of the autonomic nervous system, which controls all bodily functions that we don’t have to think about.
Individuals experience orthostatic intolerance, which means that they mostly experience symptoms when in an upright position.
The majority of people with PoTS also have other related medical conditions such as hypermobile Ehlers-Danlos Syndrome, allergies, Long Covid and ME/CFS- all of which can make symptoms worse.
If you are new here please take the time to view the image thread below to learn some basics about PoTS:
🟣 Symptoms
🟣 Tests/Investigations/Diagnosis
🟣 Treatment- lifestyle changes & medication
View our website to learn more about symptoms: potsuk.org/about-pots/sympto…
#MedTwitter #TeamGP #ChronicIllness #LongCovid #InvisibleIllness #MECFS #EDS #MCAS @DrSdeG @elisaperego78 @DrSarahJarvis @mermhart @cpgale3 @LongCovidAdvoc @LC_Physio @MEAssociation
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
Thanks @covidinquiryuk
The lives and deaths of the social care workforce matter very much.
Data is the bedrock for parity of pandemic protection and commemorations.
ALT Extract from p201 from Module 6 Report published in October 2026 - about collection of mortality data.
Great example of power of collaboration and need for data. Disappointed our FOI request @The_HCPC didn't yield much
whatdotheyknow.com/request/h…
Did @theRCOT track impact Covid & Long Covid on members who lost their lives and livelihoods, through membership data & Advisory Service?
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
Surgeon: "There has been a large national focus on delays for elective surgical care such as hip and knee replacements. However, delays for emergency surgery also result in significant and avoidable patient harm."
The number of hip fractures is set to double in the next 10 years
🚨 EXC: Nottingham hospital launches urgent investigation into hip fracture deaths as its mortality rate hits 50% more than national average - the problem is linked to long delays for emergency surgery according to internal documents.
Full story: thetimes.com/article/b5bc397…
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
Meanwhile as a former Nurse I’m now disabled by Long Covid. Dismissed by an uncaring NHS, they have the audacity to say I can’t prove I caught it at work. The UK was in lockdown where else could it have come from…
£50 MILLION of taxpayers' money to "SG Recruitment" for PPE!
Tory peer helped secure the deal WHILE holding a financial interest in its parent company!
More than HALF the supplies were unsuitable!
£24 MILLION lost. Company now in liquidation!
🚫 Do YOUR job @metpoliceuk
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
CVF's funding is critically low.
If you can help to support our work it is always very much appreciated! 🙏
clinicallyvulnerable.org/don…
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
Ok seriously @sainsburys wth? I ordered Covid tests and they were substituted with lemsip???? And flu tests were substituted with vit D tests??? Are you kidding me???? I ordered from you specifically because I need flu and Covid tests. And they were in stock.
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
NHS doctor working in Emergency Dept:
📍MON: “ED is full of Covid & flu outbreaks”
📍WED: “I’m becoming sick, guys”
📍THU: “I’m dying out here… But I can’t call in sick… The people need me.”
This video makes me so angry. But none of it surprises me.
This is now the norm.
NHS doctor: There’s COVID and flu armageddon in our hospital... It’s everywhere, to the point where they’re definitely not swabbing on purpose... They’re like, ‘We don’t even want to know if you have COVID or flu, because it just makes things complicated.’
youtu.be/n9v49YhY5oE
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 retweeted
We all want dignity and a decent quality of life for ourselves and those we care about.
Ahead of the Budget, the Disability Poverty Campaign Group is calling on the Chancellor to invest in Disabled people's lives, not deepen poverty through further cuts.
The Disability Poverty Campaign Group (DPCG) has sent a letter to the Chancellor, John Healey, urging him to break the endless cycle of disability poverty and to rebuild trust between the community and the government.
Read the full story & letter here:
disabilityrightsuk.org/news/…
1/ 🧵 For keeping track of the additional costs for Chronically Ill and #DisabledPeople who receive care at home please add your examples too...
-Paper hand towels for healthcare workers for handwashing to prevent infections - £10.00 for a box of 60 off Amazon so + prime cost
2/ An annual replacement filter for just one of the #Hepa home filters was £175 this month
#CleanAirAtHomeCostsUs when #NHS HCW visit to provide care
#AirborneVirus
Chronically ill & #DisabledPeople
