Disabled; European; Embroiderer. 'I do not care what comes after; I have seen the dragons on the wind of morning'. ~ The Farthest Shore - Ursula Le Guin
Joined August 2012
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⚡️ “Goldwork by RSN C&D student Anne Norton”
teapawt.org/i/moments/101777222957…
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
Earlier this year I was asked if I’d be part of an international M.E quilt, embroidering a 3.5x3.5” square with whatever I wanted that meant something to me about living with this condition.
It took a long time, stitch by stitch, & cost a lot in energy, but I love it.
#MECFS
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
What absolute rubbish!
Vote Leave did own Brexit.
Johnson, Gove, Cummings and Frost took control, purged Tory dissenters, won an 80-seat majority and chose to leave both the single market and customs union.
They delivered the Brexit they wanted. Its failure cannot now be blamed on Remainers, bats or the public.
“It wasn’t true Brexit” is simply the last refuge of those who sold an undeliverable fantasy.
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
"Of course, as there is no effective treatment, it’s a difficult situation for doctors as well as patients. But even worse than no solutions is false solutions & a dangerous, gaslighting, even punitive approach to a terrible disease" George Monbiot
#ME
theguardian.com/commentisfre…
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
I'm actually shaking, I can't believe it's been voted down. I'm so proud of every single disabled person who made this happen
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
This might sound small but the fact the bill supporters keep saying ‘people with a disability’ isn’t small. The language of legislation is disabled people.
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
The Assisted Dying Bill's impact assessment confirmed that it lacks protections against coercion for disabled people. In a perfect world, everyone dying should be supported in death, but when disabled people aren't assisted to live, it can't be safe. #AssistUsToLive
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings. - Sign the Petition! c.org/GsgKCMGN8f via @UKChange
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
📢Announcing the launch of the National Disability Movement Archive & Collection (NDMAC)
The archive documents protests that challenged exclusion from public life, while preserving the stories of those whose contribution has often been overlooked.
💥ndmac.org
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
Disabled people are burnt out from fighting the same #Eugenics agenda on different fronts. And repeatedly. Victories are short lived, only a temporary reprieve from the fight because @UKLabour are now demonstrating that they want us impoverished, destitute, then dead. #NotDeadYet
ALT Freezing ? Starving? Euthanasia ?
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
DWP PIP saved £950 million last year by people not claiming what they’re entitled to thecanary.co/uk/analysis/202…
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
A permanent accessible ramp has been installed inside @York_Minster , marking the largest architectural addition to the building in the last 200 years bbc.co.uk/news/articles/cp8p…
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
Today is #MEAwarenessDay
ME/CFS is often described as neglected and under-researched. That ignores the true history. George Monbiot and Carol Monaghan have described it as one of the greatest medical scandals of the 21st century. They’re right.
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
Great news from the UK🍾
£4.75 million to do whole-genome sequencing on 6000 DecodeME samples
thetimes.com/uk/healthcare/a…
(paywall)
Unfortunately it's not enough to analyse the full sample
People can find out more about SequenceME & donate here
megenetics.org.uk/our-projec…
#MEcfs #PwME
ALT Landmark ME study will map patients’ DNA in mission to find cure The government will provide £4.75 million in funding to British scientists who aim to create a test to reliably identify chronic fatigue syndrome new Maeve Boothby O’Neill died in 2021 from malnutrition caused by severe MEPA Oliver Wright, Policy Editor, and Kaya Burgess, Science Correspondent Monday May 11 2026, 10.15pm BST, The Times Listen • 4:24 min Share Prefer us on Google Thousands of patients suffering from chronic fatigue syndrome are to have their full genetic codes mapped in an attempt to find a cure for the debilitating and mysterious illness. The study, a world first for the syndrome also known as myalgic encephalomyelitis (ME), will be funded by an investment of £4.75 million from the government in the hope that it will lead to a test to reliably identify the illness and eventually develop drugs to treat it for the first time.
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
It took three years to force @DWPgovuk to release this paper, which shows how its repeated errors and inaction are causing the lives of disabled claimants to 'spiral out of control'.
@CommonsWorkPen
disabilitynewsservice.com/se…
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
New #DWP overpayments concerns ‘show something with universal credit has gone catastrophically wrong’
disabilitynewsservice.com/ne…
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
Calling disabled people in #York - If you are a legacy benefit claimant transitioned onto UC facing a much higher council tax bill, and reduced council tax support, please contact us on [email protected]
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
An investigation from the Canary shows the DWP and Access to Work are categorising people with ME as having 'acquired neurodivergence'
thecanary.co/uk/analysis/202…
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
A year ago today since York protested Govt’s welfare reforms outside Council. They set up a Task& Finish group to ‘prepare for benefit cuts’. Well the first cut lands in 11 days yet I can find no evidence this group has met. So much for all the fine words of
solidarity.
ALT Multiple protestors in St Helen’s Square with placards opposing welfare reform cuts.