P.D 𝕏

Same medicine. ₹4 crore a year vs ₹2.5 lakh a year. 💔 A helpless mom came to me with her child, who has Allan-Herndon-Dudley syndrome (MCT8 deficiency). It was very painful to see them so helpless. I tried to find a solution as if it were my own child. I couldn't rest otherwise. Tiratricol wasn't available in India. Dr Santosh and I wrote to doctors. Dr Praveen and others directed us to the Erasmus team, who did the trials for Tiratricol. After many emails, they suggested Egetis Therapeutics might be able to support the child. I teared up. But our happiness was short-lived: Egetis said it could not give us the medicine. I wrote to many journalists. I posted on Instagram and tagged the PM. Someone told me Tiratricol was available in Germany. The mother bought it, paying ₹12 lakh for just one month. That's impossible to keep up for life, for this child or for the five other children with the same condition under Dr Praveen's care at CMC Vellore. Finally, Toufiq, a senior journalist, wrote about it, and it reached the Pharmaceutical Accountability Foundation in the Netherlands. They said Tiratricol can be made available at ₹2.5 lakh per child per year, against ₹4 crore per child per year by Egetis! I raised funds, and the Pharmaceutical Accountability Foundation raised funds. Now 7 children are getting the medicine free of cost for one whole year. (The 7th child was added after my Instagram post.) 🙏 Thank you to Access to Medicines India and Organization for Rare Diseases India for their important role, and to geneticist Dr Kishore, who helped us reach the diagnosis. India can compound the Active Pharmaceutical Ingredient here and make it available to every child with this condition at a reasonable cost. 👉 Please tag @narendramodi @JPNadda @MoHFW_INDIA People of India, you can make it happen! Please share. 🙏 All the paediatricians, endocrinologists, paediatric endocrinologists, and paediatric neurologists, if you are currently caring for a child with confirmed or suspected MCT8 deficiency, please share the details below. Our team may contact you for further clinical information and coordination regarding diagnosis, treatment and access to tiratricol. Please do not upload or share unnecessary patient-identifying information at this stage. docs.google.com/forms/d/e/1F… #AllanHerndonDudley #MCT8Deficiency #Tiratricol #Triac #Emcitate #RareDiseases #RareDiseaseIndia #AccessToMedicines #PharmaHijack #ChildHealth

Reality of Health Sector under BJP govt. Modi Govt has allowed Doctors from Alternative medicine courses to work in modern hospitals even in critical departments.

HMT to launch four new Kannadiga watch series for Kannada Rajyotsava, prices start at Rs 3,500 ebx.sh/rns62W

一个中国工科学生在宿舍里搭了个气象追踪站。 三台 Mac Mini。两块显示器。屏幕上全是卫星图。每台机器都贴着标签：UI/UX、DEV、ADMIN。总成本不到 2000 美元。 室友以为是气候研究项目。教授以为是毕业设计原型。他没解释。 后来有人发现，这个站真正连着的是一个钱包。 ColdMath 利润：101,042 美元 预测次数：5,252 2025 年 11 月加入 简介：Edge Compounds 这个站只做一件事。 Claude 拉取飞行员用的实时气象数据。真传感器，真读数，全球站点每 1-3 小时更新一次。然后和预测市场的价格对比。 对不上号，DEV 那台机器就报警。发现偏差，下单。结果变绿。 25 美元押东京 3 月 20 日 16°C，兑回 12,452 美元。 24 美元押芝加哥 3 月 11 日 54°F，兑回 12,398 美元。 13 美元押勒克瑙 3 月 7 日 39°C，兑回 6,850 美元。 25 美元的注，赚回一万二。赌的是天气。 一个飞商业航班的朋友告诉他：飞行员拿到大气数据的时间，比任何公开预报都要早几个小时，精确到 0.1 度。这些数据免费——航空安全强制公开，但航空圈以外几乎没人看。 他看了。让 Claude 对着数据流，每天找出每一个“预报和价格对不上”的城市。Claude 每天都能挖出几十个。 有一天早上室友看见气象站还在跑，终于忍不住问他到底在干嘛。学生把钱包余额给他看了一眼。室友愣了半天，只说了一句：给我也加台显示器。 现在 3.4 万人在看这个钱包，还有 9.6 万美元活跃仓位。 三台 Mac Mini，两块屏幕，一个闷头做事的学生。他发现了地球上最可预测的东西——就是那个所有人都忽略的东西。 天气。

Chennai Police gets new Honda Elevate cars and Honda CB350 bikes!! 🚓🏍️

A portable fire extinguisher that uses sound waves instead of water or chemicals. Developed by a Mexican student, the device, called Vortex Tech, uses a 12-volt battery, a frequency generator, an amplifier, and a speaker to produce low-frequency sound waves at approximately 30 Hz. These sound waves create vibrations and airflow that disturb the flame and disrupt the oxygen supply needed to sustain combustion. This can extinguish small fires without water, foam, or chemical residue. The technology could eventually be useful in environments where water or chemicals might damage equipment, such as electronics facilities and data centers. Credit: Unknown, ViaWeb

The one & only Usha Uthup mam & for agreeing to be part of something this hilariously musical! 🤌❤️

Dibikin ngakak & geleng-geleng kagum sama iklan dari Thailand ini. Kalau liat beberapa detik awal, nggak nyangka bakal promosiin produk itu 😂 Kreativitasnya memang udah next level!

Elon Musk explains why charging your EV to 100% on a road trip is a mistake: On a road trip, your instinct is to fill the battery all the way up. That's how you'd treat a gas tank. But a battery doesn't work like a gas tank. Charge to about 80%. Drive it down to 10% or less. Repeat. This is just for long trips, when you want to spend as little time at the charger as possible. Elon: "Getting from 80 to 100, it takes about as much time as getting from 0 to 80." The reason is what's happening inside the battery. Lithium ions travel from one side to the other, looking for a place to settle. Think of them as cars hunting for a parking spot. When the lot is empty, they zip right in. As it fills up, they have to circle around, like at a packed mall. So the closer the battery gets to full, the slower it charges. The last few spots take the longest to find.

Mainpuri, U.P 🚨⚠️ Disturbing Visuals 🚨 Looks like while cleaning the car…Tata Tiago EV on Reverse mode + Ignition ON, reverse tail lamp lights seems to be ON + forgot to engage Hand Brake…🤷‍♂️ Distracted Parking? @DriveSmart_IN @dabir @InfraEye